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Liver Transplant for Primary biliary cirrhosis (PBC)

Transplants | Last Active: Dec 14, 2021 | Replies (75)
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@rosemarya

@mikej, Welcome to Mayo Connect. Having cirrhosis and not being able to have a meaningful conversations with your doctor has got to be frustrating. This is not what we expect when we have questions.

I find it helpful to take someone with me when I have questions or get a test/scan results. I find that an extra set of ears is helpful as well as someone else to ask or intervene for me when I need answers. Do you have anyone who can go with you?
Mikej, I would like to ask, if you are being treated by your primary care doctor (PCP) or by a gastroenterologist? How often do you see your doctor?
What question would you like to ask?

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Replies to "@mikej, Welcome to Mayo Connect. Having cirrhosis and not being able to have a meaningful conversations..."
mikej | @mikej | Nov 23, 2021

Thank you , No seeing a gastroenterologist but his favorite line is don't read to much on the internet , trying to get in with SLU here in St.Louis , I see him about every 6 months but they found a spot on my liver about 2 months ago and have to get another mri in a few weeks ! I guess my questions would be is there anything new out yet , I am 59 and he says would never get a transplant cause yo many people are waiting , and I am not sure I would anyway . Is there any symptoms when things start to get real bad other than what you can read , I had a epidural Thursday , it my knees are so bad is there anything out there that would help with the pain , I have a lot more but this is a great start , thank you so much ! Mike

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