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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)
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@lisa53

Sorry to write you two replies but I wanted to add that all of my doctors believed me immediately about the flares - so that was good. As a person who struggled for years to get to a diagnosis, I am grateful for that. I can imagine many will not get the support of their providers.
I reported my symptoms to my immunologist, PCP, the CDC (I signed up for that after test survey), my pharmacist, and The Immune Deficiency Foundation. I felt it important to share my experience for that very reason - so many do get doubted.

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Replies to "Sorry to write you two replies but I wanted to add that all of my doctors..."
athenalee | @athenalee | Nov 29, 2021

Love the metaphorical spin! Like you, some of my symptoms flared after the shots, they’ve reduced some. Although the numbness in my extremities continues to spread. My neurologist recognized my symptoms as a Sjogren’s flare. I’m glad you’re doctors recognized yours as a flare. I’m unfortunately reluctant to get a booster because
of this.

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