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@johnbishop

Hello @bunnynumbfeet, Welcome to Connect. I really never had pain with my idiopathic small fiber PN but was looking for something that might slow or stop the progression. I think the 525 protocol has helped slowed and possibly stopped the progression of my neuropathy but it's subjective on my part since I haven't had a followup nerve conduction study and I have never had a skin punch biopsy to corroberate that it's better now. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/

I think the folks who benefit the most from the 525 protocol are the ones who have a lot of associated pain and are on medications for the neuropathy pain. A member of the Facebook group shared how it helped them in another discussion here - https://connect.mayoclinic.org/comment/611196/

I have balance issues also. Some I think is related to my neuropathy and some to my age and other factors. I have been working on my balance problems with exercise to see if I can improve it. Here's a discussion you may find helpful -- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

Have you tried any exercises or physical therapy to help your balance problem?

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Replies to "Hello @bunnynumbfeet, Welcome to Connect. I really never had pain with my idiopathic small fiber PN..."

Hello John. Thanks for the response. It's nice to be in touch. I did have a therapist come to the house a couple times a week then we did the kinds of exercises that you shared. Like most people, I despise exercising but it looks like that may be my last resort and will try it again. I will also try the 525 protocol. Thanks, Bunny