Connect
← Return to Liver Transplant for Primary biliary cirrhosis (PBC)
Discussion
Liver Transplant for Primary biliary cirrhosis (PBC)
Transplants | Last Active: Dec 14, 2021 | Replies (75)Comment receiving replies
I am new here but have stage 4 cirrhosis alcohol , after so many mri, fibro scans , and my doctor doesnt like to answer questions. I am to the point where my knees hurt so bad when i wake up or sit down at night hard to walk, Sounds like a lot of new stuff in the works, hope they find something to help. I wish this pain on no one . He gave me 5 years at most in Jan 2018, just seeing if anything out there since I cant get any answers except off the internet, thanks for any replys , guess the only thing I havent had is jaundice ! Mike
Replies to "I am new here but have stage 4 cirrhosis alcohol , after so many mri, fibro..."
@mikej, Welcome to Mayo Connect. Having cirrhosis and not being able to have a meaningful conversations with your doctor has got to be frustrating. This is not what we expect when we have questions.
I find it helpful to take someone with me when I have questions or get a test/scan results. I find that an extra set of ears is helpful as well as someone else to ask or intervene for me when I need answers. Do you have anyone who can go with you?
Mikej, I would like to ask, if you are being treated by your primary care doctor (PCP) or by a gastroenterologist? How often do you see your doctor?
What question would you like to ask?
Connect
I also have cirrhosis and my liver threw off 3 caesonimas. I did y90 twice which seems to have killed them. Are you on a transplant list, Do you know what your MELD score is? Fo you have varices or acuities? I think I’d find a good hepatologist, it’s not good that your doc won’t answer you.