← Return to Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?

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@machak

I have been dealing with right hemidiaphragm paresis since about 2000. Happy to give any pointers I can, though mine is caused by An autoimmune condition attacking my nerves. The biggest difference is mine comes and goes as the nerve gets damaged and repairs itself during flares and calm times in the disease. For me it last from days to months, but so far has always come back eventually.

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Replies to "I have been dealing with right hemidiaphragm paresis since about 2000. Happy to give any pointers..."

Your post caught my curiosity. I have suspected for a very long time that I may have some sort of undiagnosed "nerve autoimmune" condition. or the last 20 years or so, to the present time, I have experienced 3 episodes of "shingles without the rash" which was so painful that it took me to the ER. Both went undiagnosed at those times, and resolved on their own (although the neuropathy was VERY painful...).
Not, I have a paralyzed phrenic nerve with no known etiology.
Can you share what kind of condition you were dianosed with?? I am also seeing an Immunologist that specializes in autoimmune diseases; however, no diagnosis yet. Thanks in advance.

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