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mandiPNE (@mandee)

Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Jun 18 4:08pm | Replies (448)

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@olivedog

I have had this issue for 5 years now, from a botched hemorrhoid banding…not one doc I have gone to has helped. I'm now having to take pain medication and treated like a criminal. I do not understand WHY the pudendal nerve is so misunderstood!!!! It ruins so many lives, and the pain is undescribable!!! It is just not ok that so many suffer, and no one to treat it. It's a nerve that can be seen in special MRIs…specialized radiologists can see. Why is this nerve so overlooked
when it is part of your urinating and defacating processes???? I'm sorry but that is a big part of everyone's life. This pain is incideous and I'm tired of looking …when all I read are bad results. This needs to be researched & taught in medical schools everywhere. It is not rare, men & women have it. I'm disgusted with lots of scammers and greed too. This has made my life no life, full of pain and pure frustration. If we can get to Mars why can't we figure out a nerve that can be seen on a pelvic MRI, by specialized radiologists???? Shoving us aside and giving pain pills is not the answer. This is just so sad for all who have Pudendal Nerve Entrapment & can get no help, including myself. I hope there is an answer one day!!!!

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Replies to "I have had this issue for 5 years now, from a botched hemorrhoid banding...not one doc..."

@olivedog, I know it has to be a terrible feeling when you have pudendal nerve problems. I also hope there is an answer one day…soon. Here's some information I found that was last updated April 7, 2021.

" It typically requires permanent lifestyle changes and physical therapy. The treatment options include pharmacological therapy, CT guided blocks, …" — Pudendal Nerve Entrapment Syndrome: https://www.ncbi.nlm.nih.gov/books/NBK544272/

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