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Autoimmune illness and small fiber neuropathy
Neuropathy | Last Active: May 28 9:29am | Replies (51)Comment receiving replies
I went to a neurologist, who did a nerve conduction test, verified my chief complaint , small fiber neuropathy, and said only that I should see a rumatologist. NOT very satisfying!!!!
Replies to "I went to a neurologist, who did a nerve conduction test, verified my chief complaint ,..."
My doc doesn't know where to do a biopsy to check for SFN (pain mostly chest, throat, abdominal and other areas) but doesn't rule it out. When I say it is likely autoimmune cause due to elevated pr3 and skin manifestations ( though no one will diagnose vasculitis) he says "that is rheumatology " But rheumatology won't do extensive antibody testing and won't address neurological part of the condition ( yet these two docs are in the same health system and building)
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@total99 you sound very frustrated! But, you have seen a neurologist and he/she has confirmed small fiber neuropathy. The next step IS a rheumatologist. They know more about autoimmune diseases than most doctors. Find a really good rheumatologist in your area and let them help you.
https://rarediseases.info.nih.gov/guides/pages/25/how-to-find-a-disease-specialist
This information from the rare diseases assoc should help you
Will you stay in touch with me?