Microscopic Colitis: How to you keep it under control?

Any doctors who specialize in this that you use?

Hi @tlfrench,

You'll see I moved you post so you could connect with some of the members going through the same issues.
here is a video you might be interested in
https://connect.mayoclinic.org/event/on-facebook-live-ibs-and-how-we-can-help/
and here is Irritable bowel syndrome care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/irritable-bowel-syndrome/care-at-mayo-clinic/mac-20360067

How long have you been diagnosed?

And how were you diagnosed? a biopsy is important

As I mentioned a while back I was diagnosed with collagenous colitis some years ago- microscopic colitis have same characteristics.
I was diagnosed with biopsy and treated with weekly injections of methotrexate x 4. Being in remission was wonderful after spending several weeks unable to leave home. I was taking Imodium, Pepto, Gatorade and Pedialyte. I was told it could return and that I could then take oral methotrexate- I didn’t have to do that. I think it’s important to go to experienced gastroenterologists at a major hospital center.
How were you diagnosed and what made you go to get help?

I was also diagnosed with a biopsy and it was just an add on to EPI and sucrose intolerance.

Hi, sorry to hear that. I hope you feel better in future...
I have been diagnosed with ulcerative colitis, I have no knowledge about this disease and I am worried.
It's been over 7 months since I have diagnosed and I am taking mesalazine.
The diagnosed procedure was colonoscophy by gastroenterologies.
Symptoms: blood in stool.
I don't know the cause though but I have a long history of stomach problems such in 2014 stomach ache and loose motion. At that time they said it is hp bacteria.
So when did I realised what am I going through? Whenever I had spicy food I has been buring, had hard time I toilet and constant constipation.
Then I contacted doctors and unfortunately when you are unlucky like me then you will find stupid doctors they will operate on you without any investigations and they think it is hemorrhoids. So yes It was a wrong operation which they did on me. But please go direct to a gastroenterology instead of physician or surgeon.
So let back to today, I am having hard time find the right diet and lifestyle. Anyone that could help here...

I have been diagnosed recently with ulcerative colitis. I also want to know more about it. Its making me feel 😌

@malangjohn I am so sorry to hear that you are dealing with ulcerative colitis! Are you feeling better? Do you still bleed?
I get the impression that you eventually were diagnosed and treated by a gastroenterologist.
Let me give you a link to Mayo Clinic's presentation on ulcerative colitis:
https://www.mayoclinic.org/diseases-conditions/ulcerative-colitis/symptoms-causes/syc-20353326
It also seems to be an autoimmune disease like collagenous colitis, but it causes ulcers to form in the lining of your large intestine. In contrast, collagenous colitis and lymphocytic colitis have damage under the surface, not visible but seen on biopsy.
It is definitely important to learn about life style, diet and nutrition. You want to be as healthy as you can be to keep the illness under control.
It does not sound as if you have gotten much information from your doctor's office.
Would you have the opportunity to see gastroenterologists at a large university medical center or even Mayo Clinic?

Is Entyvio ever used for Collagenous Colitis?

I have never heard or read about Entyvio being used to treat collagenous colitis.
More common treatments include steroids such as Budesonide, methotrexate and other immunosuppressive medication. Have any other medications been used?