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@littlechimama

Hello I have had Sjogrens Syndrome seems like forever before I got diagnosed now years later I’m now with MCTD and found out today my kidneys are stage 3 b ! I was at a stage 3 a before a nurse told me cause I told her I was taking Advil for pain. Several years ago I ended up in icu with sepsis.. yeah they told my husband to call my children to say goodbye before they could I ended up on ventilator for couple weeks with multi organ failure. Now after Heart attack , Stent , small bowel blockage and surgery for that .I’m so frustrated with Drs seems they don’t care at all. Today the Rhuemotology doc wants to start me on Humira injections my gut tells me a big No. I’ve taken Nexium twice day for years for esophagus to find out it can cause kidney failure grrrrr. I just want to know has anyone had similar issues? Thx Nice to Meet Y’all .

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Replies to "Hello I have had Sjogrens Syndrome seems like forever before I got diagnosed now years later..."

@littlechimama, you certainly have a lot going on. You might also be interested in these related discussions:
- Undifferentiated Connective Tissue Disease https://connect.mayoclinic.org/discussion/uctd/
- MCTD (Mixed Connective Tissue Disease) https://connect.mayoclinic.org/discussion/mctd-mixed-connective-tissue-disease/
Members here are talking about MCTD and Sjogren's, like @bunnysammy @marye2 @renm @carol01 and @tigerlilly

There are many helpful discussions and members in the Kidney & Bladder group including people with Stage 3b kidney disease. See here https://connect.mayoclinic.org/group/kidney-conditions/

Have you been able to do a complete medications review with your rheumatologist to decide what is best considering your multiple conditions? What symptoms are the most challenging and what ones are you managing well?