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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (329)Comment receiving replies
Good morning, Stanley. SMZL is fortunately, (is that even the right word when dealing with a blood cancer?) a slow progressing situation and I know you’re on a watch and wait holding pattern. That’s a difficult position to be in sometimes as we’d rather just “know and deal with it”. At least that’s how I am. I like to face my enemies head on and give ‘em the stink eye. 😉 Hopefully you’re finding the conversations in Connect helpful with the handful of others who share your same condition.
I noticed that you have surgery scheduled next Monday for the nodule on your lung. I took the liberty of reading through your past posts and haven’t seen any conversations about your lung condition except in passing. We have a very active Lung Cancer group if you’d like to Connect with some members who have experience and encouraging journeys to share. I’d like to introduce you to a fellow mentor, @merpreb.
Anytime we have surgery it’s an anxious time. I be thinking of you Monday and hoping all goes well for you. 🙂 Are you feeling ok, any concerns?
Replies to "Good morning, Stanley. SMZL is fortunately, (is that even the right word when dealing with a..."
Lori and Merry, Good morning. Thank you for your comments. I have seen Merry's comments in a couple Lung Cancer threads. "Mutifocal Adenocarcinoma of the lung, continual recurrences" and "Mutiple Lung Nodules" Both threads are interesting and informative. At this point I'm not sure where I fit in and still sort of in denial. Will see how this next week goes, and anxious to see post surgery lab results.
Thanks again.
Lori,
It is so encouraging to have forums such as these to share and talk about our conditions and procedures. You bring up the challenge of watching and waiting when we want to be active participants in our care plans. I felt somewhat relieved and thankful to have a diagnosis of SMZL and am lucky for it to have been diagnosed early. However, sitting still is not in my nature, and I find myself searching for research and information on how I can play a role. Have you seen much work on patient involvement and proactive care inbetween doctor visits? Recently I was made aware of a new book titled "Moving Through Cancer" by Dr. Kathryn Schmitz. "An exercise and strength-training program for the fight of your life." Slowly I'm seeing more attention to this topic. Your thougths?
Laurie
Connect
It's nice to meet you, Stanley. It looks as if you have had your hands full with health issues. I couldn't find very much about your lung problems. Would you mind explaining what is going on, what you are having done?
I'd love to send you a link to the lung cancer group and a discussion where you can connect (pun intended) with others who also have lung cancers, or lung illnesses.
Good luck on your surgery next week. I will join Lori wondering how you do.
I am the Mentor for the lung cancer group and if I can help in any way please let me know.