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New Cystic Fibrosis (CF) Diagnosis at 73
Cystic Fibrosis | Last Active: Feb 11 11:08am | Replies (25)Comment receiving replies
Hey CKS… you are not alone.I have bronchiectasis and MAC I also have the CF gene.t had the CF diagnostic Test done and a sweat test twice.It seems to be inconclusive.My sweat test was 2.9.They are saying I have non active CF. How did they determine this at Mayo Jacksonville.?I am about to go to the adult CF center at Columbia Presbyterian Hospital in Manhattan.I have studied Trikafta,it is the miracle drug for CF but don’t know if it will help Bronchiectasis and MAC.Good luck on the treatment.
Replies to "Hey CKS… you are not alone.I have bronchiectasis and MAC I also have the CF gene.t..."
What is the CF diagnostic test and sweat test? I had the genetic test done which came back negative. But had not heard about the other tests. Thanks
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At some point, I would like to see a forum on Mayo Clinic Connect for cystic fibrosis. There is a lot of room for discussion, especially since the pharmaceutical treatments for it are different (e.g., Trikafta) than for bronchiectasis alone.