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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)Comment receiving replies
I can appreciate your comment on "not comfortable, but tolerable" and wanted to add that it was the procedure that finally determined my diagnosis. Initially, my doctors thought I might have CLL. How often do you see your oncologist? I had stretched my appointments out to 6 months but am back to 3 months because of a visit to the ER this summer (suspected heart issues that turned out to be indigestion...) I like the more regular visits.
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For the past 2.5 years I am seeing a Rochester Mayo hematologist and labs for my SMZL every 6 months. And have labs locally at the three month points. The Hematologist would like another Bone Marrow biopsy and blood workup in the next few months to establish a new baseline.. Over this time, my labs are very slowly trending worse and my spleen is gradually increasing in size. So am wondering when and where this journey will lead. But that may be on hold as another lung nodule popped up on the recent CT.
To explain further, during my every 6 month visits to Mayo, I also see an Oncologist. Two years ago while diagnosing my SMZL, they found early stage lung cancer and had surgery at that time. For this new lung nodule, I am scheduled for surgery on Monday.