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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
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@bjm5501

I am getting IVIG once a month and on baclofen. Has anyone used prednisone for treatment? I have ribcage, low back and side muscular pain 24/7. Baclofen doesn't seem to work to release my muscles from this awful tightness. It makes me walk like a tin man, It affects my posture and I don't move very fast.(I'm on a cane whenever I leave the house.)If anyone has had success with medications, please pass it along.

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Replies to "I am getting IVIG once a month and on baclofen. Has anyone used prednisone for treatment?..."
John, Volunteer Mentor | @johnbishop | Nov 16, 2021

Hello @bjm5501, Welcome to Connect. You may find this discussion with @pattygail @sandra319 and @hammere4 helpful – Stiff Person Syndrome https://connect.mayoclinic.org/discussion/stiff-person-syndrom/

Here is another patient story that you may find helpful — Sharing Mayo Clinic: Diagnosed with stiff-person syndrome:
— https://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-diagnosed-with-stiff-person-syndrome/

Has your doctor suggested any physical therapy for you?

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krb65 | @krb65 | Jan 7, 2022

My daughter takes Clonopin and baclofen as well as IVIG every 3 weeks for 2 days,this has kept her pretty stable for the last 2 years until Nov '21 when she had a crisis situation and was hospitalized been there ever since.

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