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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (329)
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@stanleykent

Hello, I also have SMZL and am interested in the discussions and experiences with this lymphoma and appreciate this forum. They found my SMZL in 2019 and am being seen regularly on a watch and wait. Some places offer sedation for the bone marrow biopsy, Due to scheduling difficulties I did not have sedation and the staff was very good and the procedure was not comfortable, but tolerable.

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Replies to "Hello, I also have SMZL and am interested in the discussions and experiences with this lymphoma..."
kayak4me | @kayak4me | Nov 16, 2021

I can appreciate your comment on "not comfortable, but tolerable" and wanted to add that it was the procedure that finally determined my diagnosis. Initially, my doctors thought I might have CLL. How often do you see your oncologist? I had stretched my appointments out to 6 months but am back to 3 months because of a visit to the ER this summer (suspected heart issues that turned out to be indigestion...) I like the more regular visits.

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