Need hope: Neuropathy from chemo

@needshope78, Here are a few articles that provide information on chemo induced neuropathy that you may find helpful.

What are the best remedies for neuropathy from chemo?: https://www.medicalnewstoday.com/articles/323481
Breaking Away From Pain With the Help of ‘The Scrambler’: https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

I had my first chemo treatment yesterday (7/20/20). After I finished it, I noticed that the mild neuropathy in my left foot, which I have had for years, was more pronounced. I got on the internet and found out there'd.s a company (OrthoFeet) that makes special shoes for people that suffer from foot problems, including neuropathy. I ordered a pair of their shoes. I'll let you know if they make a difference. The reviews for the shoes were very goo

Yes, stparker54, please let us know how the shoes help. I've had neuropathy from chemo for over a year now and it doesn't seem to be getting better. I do use Sketchers with wide heels that help my ankle not to turn over, but would love to find other shoes that help.

Stparker54. Sorry, I forgot to wish you luck with your chemo treatment.

stparker54, I want to add to a post in April where I suggested B1 and magnesium for neuropathy. . I recently found Benfotiamine while searching for my wife's macular degeneration. Since it's fat soluble thiamine in the body it lasts longer and remains at a higher level. Please check into it for your neuropathy.

Thanks.

Hello! Does anyone have any suggestions for what helps with chemo-induced neuropathy? My fingers and toes, especially, are stiff and uncomfortable the week after treatment. Any ideas are appreciated! Thanks.

Hi Valentina, neuropathy is a common side effect with some types of chemotherapy, including some chemo regimens used for endometrial cancer. I think fellow gyne cancer members like @bendeb @chowmama2 @katethegreat @dianainstaug @needshope78 @sarcomasurvivor and @miriam57 may have experiences to share with you as well as tips on how to deal with stiff fingers and toes.

To help you connect with others talking about chemo-induced neuropathy, I moved your message to this existing discussion in the Cancer: Managing Symptoms group: https://connect.mayoclinic.org/group/cancer-managing-symptoms/

Valentina, you mention that the stiffness is especially uncomfortable the week after treatment. Does the stiffness ease in week 2 and later? How many weeks do you have between treatments and how many treatments will you have?

For any interested in all the chemo-related neuropathy discussions, here is a list:
– Chemo-related Neuropathy https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/
– Need hope: Neuropathy from chemo https://connect.mayoclinic.org/discussion/needshope/
– Does anyone have a treatment for Neuropathy due to chemo https://connect.mayoclinic.org/discussion/does-anyone-have-a-treatment-for-nueropathy-due-to-chemo/
– Breast Cancer and Neuropathy https://connect.mayoclinic.org/discussion/just-to-say-hello/
- Cancer survivor now developing late side-effect of neuropathy https://connect.mayoclinic.org/discussion/cancer-survivor-now-developing-neuropathy/

There is no medication for neuropathy but there are numerous studies using supplements. I read one from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone.