Hello, I also have SMZL and am interested in the discussions and experiences with this lymphoma and appreciate this forum. They found my SMZL in 2019 and am being seen regularly on a watch and wait. Some places offer sedation for the bone marrow biopsy, Due to scheduling difficulties I did not have sedation and the staff was very good and the procedure was not comfortable, but tolerable.

Renee,
I've lost track of some posts and replies but wanted to check in and also ask a question of you and the group. I had great results from my bloodwork of late last year, and just had another checkup. Unfortunately, my bloodwork coincided with the trail end of a cold and my numbers were slightly elevated. (I had tested negative for Covid but had sore throat, slight cough, and tiredness.) My ocologist mentioned an ivig infusion, telling me he has a "low threshold" for that procedure. My proteins aren't at scary levels but I could tell he was suggesting I could have the ivig to bolster my numbers. We left it that if I have recurring colds or other symptoms I should have it done. I know that I've been trying my best to live healthy and manage my immune system without any infusions, and that saying yes is acknowledging this is a cancer that I have little control over. (That's a tough realization for me.) However, I realize this is a resource I probably should take advantage of, especially with Covid still lurking. Can anyone offer insights about side effects or other issues with ivif? I am due for my second Covid booster - sounds like side effects are similar to covid shots - I always end up with flu-like symptoms. Beginning to dread that about every issue but think I need to buck up and deal!!! Hope you are well and your health is steady! Laurie