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DiscussionPatient Advocacy or Patient Navigators at Mayo Clinic
Just Want to Talk | Last Active: Feb 13 1:22pm | Replies (18)Comment receiving replies
Replies to "It’s stage IV breast cancer. I’m tired of the silly pretense of care so don’t waste..."
@vrtameshrew Here at Mayo Clinic Connect we are patients just like you. Some of us are family members of patients, some of us are both. We are not medical professionals, but are caring individuals.
Like you, I have had my share of uncaring people [professionals and lay people alike] talk to me about my health issues, all the way back to 1988! Over time, I had to learn to stand up for myself, and advocate for what would be the best treatment, even when I was sick, or hurting, or could barely focus my thoughts. Frustrating? You bet! Feeling like I was being ignored? Yep! So I had to go above those people and make my voice heard, loudly at times, even if it was only for the satisfaction that another patient might benefit from my bad experience.
Not feeling well makes the raw feelings more raw, don't they? I am undergoing chemo for a blood cancer, and there are days I just don't wanna. Adding to that is kidney cancer, which is another whole ballgame. So, I kinda get where you come from. I really hope you reread @colleenyoung's message and let the staff know how you were treated. And I really hope you'll let me know how I can help you.
Ginger