Hello @leahdrose
Thank you for jumping into the conversation! Do you currently have CMV and BK or have they been resolved? Do you know your current CMV Quant PCR blood test number and BK? After 6 weeks of 900mg Valcyte twice a day, my CMV number went from 140,000 to below <200 which is considered normal after infection. I was VERY frightened during my 6 week bout of CMV so I am sure you are feeling the same. My donor was CMV positive and I was negative. I got CMV approximately 7 months after my kidney transplant. Are you a Mayo Clinic patient? If so, and you are still battling CMV and BK, ask your Transplant Case Manager for a consultation referral to the Infectious Disease Transplant Clinic. You can have a video call, they have access to all of your records, and they are very helpful. They coordinate with transplant and help resolve these scary viruses. Is ID currently involved with your situation along with your Transplant Team? As you know, with our transplants it's a fine line between infection and rejection. It's important to know if your current rejection numbers are caused by infection or not enough immune suppression. To resolve the rejection they will be diagnosing if the active CMV and BK is causing the problem which may mean less Cellcept again so your body can fight off the virus, or if the viruses are resolved and you need an increase in dosage to fight off the rejection, or if it's something else. When is your kidney biopsy and how are you latest CMV and BK blood numbers this week? I assume you are having blood tests weekly?
The great news is that Mayo has an extraordinary team that work together to diagnose and resolve these issues. They see this every day!! Very common problems. It's just another walk in the park for Mayo Transplant and Infectious Disease! You can have confidence that they will diagnose and resolve these issues for you. ❤