Hello @dcline78 and welcome to Mayo Clinic Connect. I am sure that you do feel frustrated that you can't get the kind of testing that you need. While SOD is known by many GI doctors, it is not a well-known disorder and can often be overlooked. Does your doctor give you any specific reasons for not following up on this diagnosis?

I'd like to direct you to another conversation about SOD. Please read the posts and ask questions or make comments to anyone there by clicking on "Reply." Most of these members also had a hard time getting a good diagnosis.
https://connect.mayoclinic.org/discussion/i-have-sphincter-of-oddi-dysfuncfion-it-causes-severe-upper-abdominal-pain/

I would like to invite @amber142 to post with you as well as @mco1989.
They have also discussed SOD.

Here is another discussion by other members who have had digestive problems after gall bladder removal.
https://connect.mayoclinic.org/discussion/post-cholesectomy-gallbladder-removal-chronic-back-pain/

Based on your symptoms as well as your weight loss, I would suggest getting a second opinion. Have you considered a second opinion with a GI doctor who knows more about SOD?

My stomach starts hurting reading your story! I’ve been d there and occasionally get flare ups.
Did you have MRCP?
I had 2 ERCPs after my gallbladder surgery, with widening of the opening.
Elevated LFTs was not really a criteria then. If needed, try to get a blood draw in the middle of an attack. It shouldn’t be necessary though.
With the weight loss and frequent pain it sounds like a good idea to switch doctors.

The link to Cleveland Clinic in Teresa’s post gives a good description of the problem. Note that it also covers the surgical treatment and risks.
When I first started to have problems years ago, I had an MRCP, showing “gravel” in bile duct, not real stones. ERCP followed and bile duct was cleaned out and I was fine for months. However, pain etc. returned and this time the opening was cut wider. I don’t know if it was a complete sphincterotomy.
It was fine for a long time, but if I was not careful with what I ate I would have an attack. Once I had pancreatitis which became chronic over time.
Things have settled down now, but there is still the risk of pain. It usually lasts 8 hrs.
It would be great if you could be seen at Mayo or even Cleveland Clinic.

You symptoms see to be similar to mine-which after a million tests, I found a doctor to treat. It’s called Mesenteric Artery Ligament Syndrome. There’s links here if you want to check.

You can connect to the Facebook Mals Awareness page and they have lots of information. The test to check is a CT scan with picture on inhale and exhale. Also, a Doppler ultrasound. check the celiac plexus when breathing. Very few doctors know what to look for.