(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Hi all I have just started inhaling saline 7%. I have been told to use 4ml, nearly a teaspoon, saline which only takes a few minutes to inhale. Is it the same for all of you on saline?

@alleycatkate I could use some help with nebulizing. Are you suppose to breath in and hold it before breathing out? And if yes,, then a lot of the mist escapes into the air.Flib.

@flib Hi Flib...I am pretty new to this but go by this from a bronchiectasis.site...pretty simple. They even have a video but here is the site and the nebulizing info: : http://bronchiectasis.com.au/physiotherapy/techniques/inhalation-therapy-via-a-nebuliser

Sit in a well-supported chair with a neutral lumbar spine – this enhances the function of the diaphragm and the pelvic floor and minimises musculoskeletal stress (Fig. 1)

Use a mouthpiece *, if possible, and place it well into the mouth on top of the tongue

Instruct the patient to breathe in slowly, with varied inspiratory volumes

Hold the breath briefly before exhaling

Continue until the nebuliser bowl is empty

@heathert Hello...saw your post on nebulizing saline. I am using the 4 ml that is premeasured but here is the difference ....it takes me more like 12-14 minutes to inhale it and then another 3 or 4 to huff and then to cough up the phlegm. Are you sure you are using 4ml as your nebulizing time seems very brief? From what I read you should breathe in and out slowly and deeply. Kate

@windwalker sounds like you need to sit down with him and talk...once you feel calmer...he doesn't seem to understand how fragile your health can be...easy to do if you generally look and act healthy. I'd say particularly for a man, but both men and women tend to be unable to fully grasp the seriousness of an illness/condition that's not always visible - we're not in a wheelchair or on oxygen, we do our best to live a life a normally as possible; folks forget or just don't get how susceptible we are. If helpful, bring him to a doc appt so the doc can verify your limitations and explain the reason for them in a way your husband will get...

Hi all I have just started inhaling saline 7%. I have been told to use 4ml, nearly a teaspoon, saline which only takes a few minutes to inhale. Is it the same for all of you on saline?

I would be ticked off if my husband had volunteered my services to anyone. You don't give up your individuality when you become a couple. Larger problem is the very common lack of understanding of the difficulties of this lousy disease. You're up your down. No predicting how you will feel throughout a day. And the necessity of avoiding any thing that might infect your lungs. Getting a cold can be very serious. I know, I landed in the hospital with what started out as a cold. Maybe send you husband over with a note saying you have a chronic illness and must avoid colds of any kind. I dislike having to educate the people around me about my illness...I mean who wants to talk or hear about it. But it's necessary; it's part of taking care of oneself. So hit you husband over the head with a frying pan, forgive him and carry on and stay away from those kids for now.

@windwalker Terri....feel pissed at the situation with the imported cooties.......BUT know hubby was acting out of being helpful.....and assuming he is relatively heathy has no frame of reference. I honestly sometimes wonder if males reasoning and brains are designed differently than females.
Meanwhile, how to stimulate your immune system....play favorite...music.....read or watch items that release endorphins.....call a chum that you love to yak with. Etc
Meanwhile I will send the “white light “ that those cooties will pass thru your system and do no damage. Tdrell terri

Hi Terri! I am so sorry you’re sick. I’m sending hugs from Mayo Clinic!! I hope you’re going to be well soon. I got sick last week and ended up in the emergency room twice. Feel better!! Rita.