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Kidney donation when you have an ectopic kidney

Transplants | Last Active: Nov 7, 2021 | Replies (4)

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@gingerw

@shockeysmom Welcome to Mayo Clinic Connect! I'm glad you found us, and your questions is definitely one I had to look up!

How generous for you to offer a kidney to your friend. As your friend may have told you, PKD can be such a cumbersome issue in relation to end stage kidney disease. There are several of my friend who have had that same diagnosis.

Can the transplant team choose to use the ectopic kidney as the donation organ? If not, why not? If they are unwilling to answer these questions, I would look at another transplant center for their opinion. Here is a scientific article that speaks to your same situation, showing an ectopic kidney should not be precluded as a possible organ for transplant! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5474263/#:~:text=Ectopic%20pelvic%20kidneys%20can%20provide,who%20successfully%20donated%20his%20kidney.

Please let me know what you find out, okay?
Ginger

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Replies to "@shockeysmom Welcome to Mayo Clinic Connect! I'm glad you found us, and your questions is definitely..."

Hi! Thank you for your response! As I only got this information on Friday, I am still absorbing it. I plan to speak to them again and ask them to run it by me one more time so I can understand why they are thinking they cannot perform the surgery. Also, I'll be receiving the actual CT report on Monday.
I live in the Dallas/Fort Worth area and my friend is a patient at a transplant center in Fort Worth.
I have already reached out to the Mayo transplant center in Phoenix, so I am hoping they would take a look at this case and give me another opinion. They may say the same thing, but I want to give it a try.
Thanks for the article too!