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CRP and SED levels

Polymyalgia Rheumatica (PMR) | Last Active: Apr 1, 2022 | Replies (21)

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@johnbishop

Hi @aliceoleary, Welcome to Connect. When my PMR came out of remission in 2016 my CRP was 13.8 MG/L with the normal range being <= 8.0 MG/L. I don't remember what my CRP or SED rate was when I was initially diagnosed with PMR in 2007. Both occurrences I was started on 20mg prednisone which got rid of all the pain within a few hours of starting the drug. It took me 3-1/2 years to taper off of prednisone the first time but only a year and half the second time around. I think this is because when it came out of remission I knew I needed to make some lifestyle changes and started eating healthier and doing more exercise.

Here's some information that might be helpful if you are looking to make any changes - What to eat if you have polymyalgia rheumatica: https://www.medicalnewstoday.com/articles/321683

Hopefully other members can share their experience of high CRP levels. Here's some information on what high levels mean that may be helpful.

-- What does it mean if you have a high C-reactive protein?: https://www.medicalnewstoday.com/articles/322138
-- Polymyalgia rheumatica with normal values of both erythrocyte sedimentation rate and C-reactive protein concentration at the time of diagnosis: a four-point guidance: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5911650/

Are you seeing a rheumatologist or were you diagnosed by your primary care doctor?

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Replies to "Hi @aliceoleary, Welcome to Connect. When my PMR came out of remission in 2016 my CRP..."

The highest my CRP level was 42.2 on Dec. 21st/21. I go for repeat blood work tomorrow Jan. 14/22. About a week and a half into 40 mg. of Prednisone. Yesterday I started with bad jitters, high anxiety (which I have anyway) and very angry (which is not me). Because it's affecting my stomach, I've stopped with the Ibuprofen. BUT, when I was being diagnosed the neurologist asked me if I had jaw pain and at that time I did not. I do have a history of TMJ. Also my job is talking for 10 hours per day and no jaw pain, although I was taking Ibuprofen. My right jaw hurts when I chew and yawn, or open my mouth wider than normal, and my ear feels great pressure. This for 2 days now; this coincidentally with the stopping of Ibuprofen. So this morning I took a Claritan to see if it relieves the pressure in my ear. When I read in the afternoons, my eyes start stinging and vision with my glasses out of wack. Almost like when it's time for a new glasses prescription, but not that prominent. Do we think this is winter allergies or possibly GTA, as head still aches a lot, especially in the afternoons??? Am I overreacting or is it worth mentioning to the neurologist?? Anyone else experienced any of this?