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@windwalker

Got great news today! Got my sputem test results back today; NO significant presence of any mycobacterium or fungal things growing.

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Replies to "Got great news today! Got my sputem test results back today; NO significant presence of any..."

@windwalker Terri thank you for that, You are doing so well, great you do not feel sick anymore, you go girl! I did the wholefoods diet for 6 months but have slipped back into the sugar, time to stop again. My Dr says because I do not have mucus I do not need to do the saline but I am not so sure.

Terri, I thought there was no treatment for bronchiectasis.

That's so great, Terri! What a great feeling that must have been when you got that news! Nan

It was great news. Thanks!

I finally got my my chloride saline! We had such a long wait! But I’m excited to start using it. And I’m looking forward to feeling great! Thanks all for the wonderful group with so many good advice. Rita

@america Yay!!! So glad you have your saline. It might feel harsh at first and make you cough. Remember coughing is good because it brings up the gunk. If you find it too irritatiing at first, do as much as you can and build up doing the full vial all at once. Most people do alright with it though. You become used to it eventually and it doesn't feel harsh (burn). Let me know if you see improvement by using it.

Thanks Terri! I will let you know! I’m going to try it today. Most of the pharmacies don’t carry it here in Tampa.. I’m not sure why but I am so blessed to finally get it.

@heathert, I have no answer for your dr's decision. I have no mucous either, but I will follow my drs treatment plan. He wants me to do it and I will because all that he has recommended for me since 2013 and brought me to better health and a much improved quality of life. Mind you, at Mayo, each patient is treated with individual treatment plans. It is not a cookie-cutter kind of place like so many others are. I have more than one lung disease going on, in fact, I have four. So my doctor feels the saline will be benificial for me. @alleycatkate posted that saline chart and the % that kill certain types of mycobacterium. You could print that out and show it to your dr. to open that discussion again. Or even ask why you shouldn't do saline.

@flib, There is treatment for bronchiectasis i.e. antibiotic prophylaxis, but no cure, no reversal of lung damage. If one has bronchiectasis, you will always be prone to mac infections. Taking monthly antibiotics helps to keep the mac from colonizing and taking over. People with mac, but not bronchiectasis are more likely to erradicate it. I feel that the inhaled saline is a big player in keeping the lungs clear so that bacteria doesn't find it a welcoming home.

Has anyone seen the video yet from the NTM World Conference?