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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Got great news today! Got my sputem test results back today; NO significant presence of any..."
Great news, Terri! So happy for you.
@windwalker ...Terri so happy for you!!!!! Celebrate! What is next for tests or Drs visits? @tdrell terri
@tdrell, Terri, I do not need to get retested until June 2019. I don't need to be seen until then unless I have an infection or other issues. I have also made it a year of no hospital visits.
That Is awesome news!!!
@windwalker Fantastic news Terri, and a year off tests too, yay. What do you think you did to achieve this, lifestyle changes?
That great Terri!!
Will you still be doing the rotating antibiotics in the mean time?
Very happy for you..
Shari
That’s great!
Wonderful! I am so happy for you. What exactly did you do, Did you take one pill for a month, then another for a month, like that? I told my infectious disease doc about it and she didn't like it. She called it progressive somethinng. As far as the nitric oxide stuff, I don't really know much about it other than it is going to be used for cystic fibrosis and copd. Working on patents. (these are canadians) know they are working on a better and faster delivery system. Not sure if safe for NTM yet, but at least there is research! I am still not taking anything, just doing exercise and saline inhalant. Seems to be holding steady. xo
@pfists Hi Shari. Yes, I have to remain on antibiotics for life. My dr explained that he is treating the bronchiectasis, not the mac. Because of bronchiectasis, the invite for mac and pseudo will always be there. I have more going on with my lungs than most of you, so I am extra suseptable to catching mac. I have to say; that I think anyone with bronchiectasis must realize that possibility.
Terri what wonderful news. Celebrate.Bridget