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Interstitial Cystitis: Anyone have symptom relief tips?
Ive been diagnosed with IC for awhile and am on Elmiron. It has been helping pretty well. The past few days Ive had a bad flare. I try not to take advil/ibuprofen. Any others out there with IC that have symptom relief tips? Im staying away from the 4 Cs, and other irritants in food, drink. (The 4 Cs being caffeine, carbonated, citrus, vit. C.)
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Jane, I'm tagging fellow members @virginiae @jeanne5009 @bladderhelp @mlcheyne and @hellobeth who have been talking about Interstitial Cystitis in this discussion:
- Interstitial Cystitis - I would like to connect with others https://connect.mayoclinic.org/discussion/i-ve-been-told-that-interstitial-cystitis-is-an-autoimmune-disease-are-there/
Has the flare passed now? How are you doing?
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2 ReactionsThe flare has gone down, i took ibuprofen. Its still acts up a little but im not feeling well altogether. So this could be why.
What works for me is to take 5mg of diazepam and 2 Benadryl and sit in a recliner with a pillow under my knees. It will not feel better at all at first. Within an hour you should see a difference. This is what I do for bladder spams. If you have a muscle relax, try taking that. My bladder spasms get so bad that they make my bowel spasm. I feel as if I need to use the bathroom really bad. Is that what you are feeling?
Hi, isn't elmiron really expensive?
I also find adding a heating pad helpful.
I am trying aloe Vera capsules and staying away from caffeine, chocolate, Spicey food, etc. I do not have pain so I must have a moderate version.
It was $483 with my insurance for 90 pills. I didn’t get it.
How many pills were you supposed to take per day?
Just curious if you do not have pain, how did you get diagnosed?
With a cystoscope used with water. It showed areas in the bladder wall that had openings with hemorrhage.