Replies to I appreciate the additional information, @ritacous40 . This does sound like a confusing and frustrating problem….

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Brain & Nervous System | Last Active: Nov 7, 2021 | Replies (18)

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@hopeful33250

I appreciate the additional information, @ritacous40 . This does sound like a confusing and frustrating problem. I suppose you have been seen by both an ENT doctor as well as a neurologist?

We have a mentor on Connect, @rwinney, who has also had some unusual vision problems and I would like to invite her to this discussion as well.

I would encourage you to keep posting and let me know how you are progressing in finding an answer.

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Replies to "I appreciate the additional information, @ritacous40 . This does sound like a confusing and frustrating problem...."

Rachel, Volunteer Mentor | @rwinney | Nov 7, 2021

@ritacous40 I'm sorry for your eye struggles. What an awful place to be in with symptoms.

My vision problems came from Fuchs dystrophy which required cornea transplants and cataract surgeries. My vision was restored but I remained having terrible sensitivities to my eyes, among other odd symptoms.

It turned out that I had Central Sensitization Syndrome, which throws of the central nervous system. This syndrome can cause a multitude of symptoms. Here's a link in case you're curious:

https://youtu.be/8defN4iIbho

Sorry I can't be much more help. Will you please keep us updated on your hopeful progress?

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