Having Difficulty Getting Diagnosis

I read your post over again and I suggest you check out the Covid Neuropathy Section too. I believe you’ll find great similarity in symptoms here. My wife also suggested acupuncture which has shown benefit too.

Could be that you have new strain of the virus. You may want to report your symptoms, which may be from the vaccine to the FDA.

Hey @austin132. How are you doing? Have you made any progress with your symptoms?

@austin132, I read through your post and saw similarities. After my second Moderna shot April 9, 2021, I had the normal 3 day not feeling well, on the 4th day I started with body pain, cyclical vomiting, migraine headache, light sensitivity, kept hydrated, had diarrhea. After 2 weeks of that I went to see my Primary. A neurologist, rheumatologist, $4k in bloodwork, 3 MRIs, 3 CTs and an ER visit, still no one can tell me what's going on. I have a migraine headache 24/7, it is like a vice on my head like where a headband would sit. There was a point were I was ready to give up, my husband help me off that cliff. My neurologist sent my files to UF Shands, UAB and Mayo Jacksonville, all have extensive waiting lists. I feel they are not looking at the side affects or publishing anything because they want everyone vaccinated. And I get that, but they need to follow those with adverse reactions as well. One big note where we are similar, I was perfectly fine April 8th, I walked 3 miles a day, did yoga every morning and water aerobics. Now I can beardly walk from my bed to the bathroom. I started doing some exercised in PT and yoga at night to relax. Keep your spirits up, I know it is hard, but try to enjoy the little things.

Wow! I am suffering the exact same as you! I've even had urologist rule out any bladder or kidney issues....I have lost 80 lbs,veins throb,severe groin pain,faint,low heart rate,on n on. Had fecal impact twice requiring ambulatory. Every specialist passes me on to another...with differing of diagnosis w 2nd consults..I need a new direction to try..if anyone can offer

Hello @jackieo67, Welcome to Connect. I know it must be frustrating to have seen many specialists and not have a diagnosis or treatment plan that helps. You mentioned in your first post that you also were told you have a redundant colon after a second colonoscopy and also mentioned severe groin pain, veins throb and more symptoms. I'm sure you have shared all of your symptoms with the different specialists and each has passed you on to other specialists.

I'm not sure where you have been seen by specialists, but if it's an option, are you able to seek help at a major teaching hospital or health facility like Mayo Clinic that offers multidisciplinary teamwork in healthcare? --- Mayo Clinic: multidisciplinary teamwork, physician-led governance, and patient-centered culture drive world-class health care: https://collections.nlm.nih.gov/catalog/nlm:nlmuid-101537958-pdf

Hi, I appreciate ur reply... I've no idea about what u mentioned.. I'm going btwn 2 different hospitals...one is suggesting pelvic congestive,the other seems to wave it off.ive also digestive issues now...after being told Barrett's w metaplasia.i was told to take ppi...tried all,made me very sick.now I was told by general surgeon to consult vascular again...

Have the doctors at the two hospitals working together to help you? If not, that is an example of not using the multidisciplinary teamwork approach. I have no medical training or background but I have been lucky enough to have doctors that coordinate well between the different health areas and different specialists to diagnose and treat my different conditions.

Do you think your general surgeon or their assistant might help you consult with a vascular specialist to bring them up to speed and hopefully a better outcome from the appointment?

Hmm...I will try that suggestion.only thing,it seems as if these specialists are either too many cases,or maybe non caring of government insurance...I barely get callbacks even! I've been going thru this since may 2020...every physician notes"patient appears very ill" I don't understand why I can't get an answer

There is a website - The Patient Revolution: https://patientrevolution.org/ that has some really good information that you might find helpful when you have upcoming appointments. Here are some topics on the site that I think are really good:

-- Tools For the Visit: https://patientrevolution.org/visit-tools
-- Communication Barriers: https://patientrevolution.org/barriers
-- Let's Talk About $: https://patientrevolution.org/cost