← Return to Interstitial Cystitis - I would like to connect with others

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@douglsrson

I was diagnosed with IC several years ago. I had 16 bladder installations, botox, hyper distended bladder (stretching), acupuncture, bio feedback with a pain psychologist, 16 weeks of mindfulness classes, neurostimulator belts, and a pain pump which worked at first until I built up a tolerance to the medication, over active bladder meds which help with urgency and frequency but don't really address the pain.

I use very little artificial sweetener and I quit drinking anything with caffeine. I also quit eating any fruit with citric acid.

I'm totally lost!!! Any ideas??

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Replies to "I was diagnosed with IC several years ago. I had 16 bladder installations, botox, hyper distended..."

Hi douglsrson, welcome. You'll notice that I moved your post to this discussion about Interstitial Cystitis in the Kidney & Bladder group (https://connect.mayoclinic.org/group/kidney-conditions/). I did this so you can connect with fellow members like @thejae1 @csage1010 @bustrbrwn22 @joybringer1 @daphne47 and others.

You might also be interested in this discussion:
- Interstitial Cystitis: Anyone have symptom relief tips?: https://connect.mayoclinic.org/discussion/interstitial-cystitis-1/