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Breathless palpitation dizzy. Cant stand or sit.
Heart Rhythm Conditions | Last Active: Nov 2, 2021 | Replies (8)Comment receiving replies
Hi @ rajoy1, I had similar, but different symptoms resulting in MANY tests regarding my relatively healthy heart. This went on for at least 5 years.
Recently my PCP wondered if it might be dysautonomia and so did my cardiologist. I had a tilt table test resulting in a provoked (nitroglycerine) "Type 3 Pure vasopressor response" meaning my BP dropped to where I was passing out with heart rate not increasing.
This is a kind of dysautonomia.
I am instructed to eat 3-5 grams of salt and drink at least 3 liters of fluids/ day. This keeps my formerly high BP up to a normal level.
There are many more possible symptoms, some of which I have.
I have an appointment with a neurologist at my state University medical center, the only dysautonomia doc in the state.
You could ask your doctor's about dysautonomia.
See a neurologist versed in this.
And look at this website:
https://www.dysautonomiainternational.org/page.php?ID=95
There's a list of doctors on there and a lot of information.
I read a book, "THE SOUND OF A SNAIL EATING" which is an account of a woman's passage through a year of dysautonomia. She couldn't sit up either.
Best of luck to you! Many people never heard of this. Find a specialist in it, others may not recognize it and call it "just anxiety"...
Replies to "Hi @ rajoy1, I had similar, but different symptoms resulting in MANY tests regarding my relatively..."
I have a wide range of debilitating symptoms that come and go out of the blue and are totally debilitating. One cardiologist said I have dysautonomia but a tilt table test came back negative so it's definitely not what's listed as POTS on a form of disordernomia. And the 15 categories of dysautonomia I do not really fit into those categories so if I have to sort of know me it's not POTS or the other 15 categories of this autonomy. The wide-ranging forms of debilitating symptoms is horrifying. From a racing hard to visual disturbances to pins and needles in my extremities to bowel urgencies to wrap it blood pressure and pulse rate changes, to heat intolerance, to exercise intolerance and these episodes will be brought on out of the blue and there's no trigger that I can see. Several neurologists though have disagreed with disorder nomia diagnosis and said they believe it's full-blown chronic anxiety and panic attacks. Over 2 years of dozens upon dozens upon dozens of tests from neurologists to endocrinologist to cardiologist and I'm still at square one with what is really wrong with me and why my heart and my breathing and my bowels and my pulse rate and my vision all go haywire.
You have vasovagal syncope
Or neurocarogeneic syncope that what the tilt table tests
You for. Did they discuss pacemaker treatment? I think you meant to type low instead of high bp all of
The symptoms could
Be explained by that. Your cardiologist didn’t know that? It’s usually in children I was diagnosed when I was 15, started having episodes
When I was 13, Mayo Clinic diagnosed me. I am 36 now and still have it. My pacemaker control it. I’m not a doctor but that what the tilt. Table test is for
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Hi @yellowdoggirl, thank you so much for replying. Yes i was on salt tablets due to low blood volume. But now with gastro issues cant take them. Neuro and cardio cleared me 6 mths ago. Only gastro now. I feel this is dysautonomia related too. I am in Singapore. Hardly any discussions here about this. Wish US medical can help me. Dont think thats possible. Are you still sick or recovered? The girl in the book is she better? Any remedy that worked? Thanks again for being so kind. Take care and be safe.