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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "Hello...Came across an article on Saline as an inhospitable host to MAC. This appears to me..."
You got it right...this study found 3 levels of salt (salinity) resistance (from least to most resistant): Group 1 includes “salt-sensitive” species (growth up to ≤3 % salt); Group 2 includes the “salt-intermediate” species (growth up between to 4 and 6 % salt), while Group 3 includes “salt-resistant” species (growth up to >6 % salt)
@alleycatkate Great job on finding this article with the sensitivity chart in it. Further proof that my doctor is on the ball. (In my opinion) After reading that, I want to be more diligent about my saline nebulizing. I did it this a.m. Thanks a million Kate!
Newly diagnosed, new member to this group. What does this about saline mean to me? Is this similar to using Navage?
The saline is great for the lungs but the problem is the water where the MAC live. As @windwalker said in an article read and the one posted by @alleycatkate article posted Make sure to boil the faucet water for at least 10 minutes. I wonder if MAC is in
purified or distilled water?
@marilyns Ask your pulmonologist for a prescription for a nebulizer and 7% solution of saline. Terri's Dr at Mayo Clinic suggests 2x a day and says that everyone with MAC should be doing it. Mayo Clinic is cutting edge. Terri @windwalker says that the saline makes it difficult for the bacteria to survive. This article seems to support that thought...looks as if the 7% actually kills it. (Could we be that lucky?) Follow the instructions to nebulize the saline into your lungs. It is simple. Also read up on Nebulizing Saline solutions so that you feel confident about doing so. I did not find any down side to it when I looked online (exception for Cystic Fibrosis patients that need to do something additional to open up the passages). It should make you cough and maybe the entire pippet may initially be too much so maybe do a little less...but afterwards you nebulize, you will need to huff, huff a few times from down deep in your chest untill you loosen the sputum and then spit the phlegm out. There are also some devices that you should consider using after nebulizing... one is called a flutter valve and the other is an aerobika. Their purpose is to loosen the phlegm off of the lung wall so you can get it out. I don't have one yet as I am also pretty new to this....and just learning the ropes. Not all Dr's will instruct you to do this and you will find that there are still Dr's that are treating old school. Mine did not suggest anything going forward...just sit and wait..I am not a sit and wait gal so I got my GP to script it for me and am looking for a new pulmonologist. I am also new here, diagnosed last month in June so it has been a real education. I do not know what Navage is??? Kate
@windwalker ...I think it is the nebulizing that is giving me lots of energy...Not sure but feeling really good....Could it be that these bacteria stinkers are just die-ing off? Thanks for sharing your Dr's protocol. I have not met the man but already love him. haha.
@nick52 I need to clarfy what this is. The saline (sodium chloride) is by prescription only. In comes in small plastic individual dose vials that are certified to be sterile. It is then inhaled with a nebulizer. It is a fine mist that does not place liquid into your lungs. It is absorbed. The benefit of using this is that it keeps phlegm thin so that it is easy to cough up. Plus, mac & pseudomonas look for thick phlegm to colonize on. The saline helps to make the lungs inhospitable to mycobacteriums.
My doctor has me on 3% saline. Says she doesn't think my lungs could tolerate 7%.I'll be seeing her 8/31 and let everyone know how that goes.
I like "bacteria stinkers". Any other nasty names out there to share?
Yes its one of the easiest methods to keep our lungs clean.
Have you heard about the men that worked in salt mines, their lung conditions cleared up.
I actually visited a hymalayan salt cave created here in Minneapolis.