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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)

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@aer

My wife has a type of hypereosinophilia, it's called Gleich syndrome. It is a rare disorder. High wbc, high eos but with swelling in muscles of extremities, sometimes painful, sometimes not. It does not cause organ. It's basically episodic angioedema. Blood tests, mri's, ultrasounds, skin muscle biopsies and bone marrow biopsies were done. She takes prednisone for it.

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Replies to "My wife has a type of hypereosinophilia, it's called Gleich syndrome. It is a rare disorder...."

Hi, i am reading your post about your wife and I am wondering if possibly this could be what I have. I also had high WBC with high EOS, swelling of face, neck, legs, back and shoulders. had pain but more weakness than pain. the only testing that came back with issues was my lab work and bone marrow showing lots of EOS and the high WBC. once on prednisone the counts started to decrease.