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Sleep Health | Last Active: Oct 26, 2021 | Replies (29)
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Replies to "Hi @mxyzptlk32, welcome back. Your valuable comment was posted to the whole group and is visible..."
@collenyoung Hi Colleen, the problem I have with this app is it isn't clear who the response is to. I hit the "Reply" button and the system assumed I was replying to JK and in the comment listed that. I agree JK should be notified but there are better ways to do that than state I am replying to her\him when I clearly wasn't. The app could leave that info off the message and notify JK separately.
I will grant you the message was pretty clear who I was responding to but once the full message was posted with the system generated info it is possible I would have deleted it and reposted with the specific names of who I was responding to. The NextDoor app, another social networking app, has the option of replying to the original message or a responder to the original message which is a bit more clear.
To the accuracy of devices...I am an app developer and fully understand the pitfalls of assuming what a device is tracking. Unless I have the code (app developers make mistakes) to review it is not likely I am going to assume any device is accurately capturing what I or the person who wrote the manual says it is capturing.
I do have a natural curiosity though so I paid attention for awhile then compared what I thought was being captured to the VEEG and Neuropsychologist said. It turns out it may have been more accurate than I first thought. I don't use the fitbit app any longer so there is nothing to compare now.
The Neuropsychologist agreed with the Epileptologist and I, a sleep study was the next step. My Neurologist and I had tried to do one several months back but it was a dismal failure. I couldn't get to sleep and then the guy that read it said I didn't need CPAP because there were no incidents. I guess someone had to graduate last in their class. I reminded him of his diagnosis when he seen me for a seizure in the hospital. He had asked me if I was on CPAP. I don't generally need an invitation to speak but he did walk into that one a bit. He went back to his notes and modified the diagnosis. It was OK though I never quit using CPAP and the seizure was stopped with an injection of Lorazepam.
My CPAP settings are set for 5-14 on a RESMED machine but I don't think it ever ramps up. I don't know if the machine is broke or if I am not having incidents. I could be wrong about it ramping up too. A number of reasons to do a sleep study.
I found a 2005 research paper on a website tying sleep to Epilepsy. It made it sound like this was a new thing. To me it makes so much sense I can't hardly believe they needed a research paper. I mentioned it to my Neurologist and Epileptologist. I think they were both aware of the paper. My Epileptologist was new at the time. I told him the history of the paper said medical professionals back in the day considered people with Epilepsy to be prophets. He told me a few years later people with Epilepsy were considered to be the Devil. I knew he had read the paper. The paper essentially said sleep issues needed to be aggressively pursued as a treatment for Epilepsy.