1. < Autoimmune Diseases

Nerve Pain

Posted by colorbug @colorbug, Sep 6, 2021

Almost all of my life I have experienced pain throughout my body. Doctors told my parents I had childhood arthritis (don't have). Told I was a nervous child because of the IBS issues. About the last 20 years have grown increasingly worse. I'm not diabetic but experience intense pain in my feet. But I experience that same pain all over my body. I feel as if I'm being pricked by thousands of needles. Currently taking Gabapentin but believe now it just makes me feel worse. Doctor wants me off Xanex and Tramadol. He put me back on antidepressants but that just seemed to cause greater anxiety. So I stopped taking them. I have tried eliminating med's that don't work. I don't sleep well at all even though I take OTC sleep aide's. Still trying to maintain so I can go to work. It is a horrible struggle. I have tried to get in to see a specialist such as a Rheumatologist or a Neurologist. But they won't see me saying my regular doctor can treat me. I'm desperate for help. The best I can do is soak in a tub of water. But it's hard to sleep like that. Water gets cold. I need help bad. I'm almost 63 and just don't see much hope on the horizon. Any suggestions is appreciated.

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noanswers | @noanswers | Oct 15, 2021
In reply to @becsbuddy "@noanswers Talk to your neuromuscular neurologist and find out the names of some nerve specialists! He..." + (show)
@becsbuddy

@noanswers Talk to your neuromuscular neurologist and find out the names of some nerve specialists! He should be able to help. Can you try that?

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It is really wonderful to have knowledgable you to run this by❤️Hope your doing well.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 15, 2021
In reply to @noanswers "WOW-thank you for this video. I have full body-pain-stinging-burning-parathesias-fasciculations-cramping-Multiple tests-MRI’s-skin biopsy-50 tubes of blood later-still no..." + (show)
@noanswers

WOW-thank you for this video. I have full body-pain-stinging-burning-parathesias-fasciculations-cramping-Multiple tests-MRI’s-skin biopsy-50 tubes of blood later-still no answers?? No surgeries-no impressive back issues-no diabetes. Only symptom is low IGM 35 and my mom had neuralgia. I have a wonderful GP-but his suggestion (after many tests)is-you can spend the rest of your life looking for an answer or let me treat your pain.
So I see a counselor- take 900mg of gabapentin and 30 mg of Nortripline. I question the gabapentins effectiveness. I tiered down from 1800mg.to 900mg. The Nortripline helps me sleep and cuts the pain a little. Trying to explain this to my family is so hard. I feel the constant need to tell them about my pain. They must be so tired of hearing it but they love me.This video is priceless-thank you.I am “Tired”-of hearing -“But you look so good”- When I don’t even recognize this body with all its wires crossed.

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@noanswers Hello. I'm so happy you found Dr. Sletten's video on Central Sensitization helpful, and that it provided you some answers to your long awaited questions. Your GP was spot on.

Have you considered attending the Mayo Pain Rehabilitation Center?
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

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Kay Rovik | @anniemaggie | Oct 16, 2021

I spent 16 years knowing I had ms, no one believed me til I begged someone who he progressive for dr. I went to the largest ms clinic in mich. for 8 yrs, when I moved away bad Drs again, went online found he had died of cancer, heartbroken. He diagnosed me, he was world famous in adult MS, & childhood neurological diseases. Dr James Garbern.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 20, 2021
In reply to @colorbug "Not doing to much better. Finally will see neurologist and have nerve test done. Appreciate everyone's..." + (show)
@colorbug

Not doing to much better. Finally will see neurologist and have nerve test done. Appreciate everyone's input. So glad I contacted Mayo. Will keep you posted on what I find out..

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I look forward to hearing your update, Colorbug.

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this1is1tuff | @this1is1tuff | Oct 25, 2021
In reply to @colorbug "I can so relate to you. I've wondered about getting an MRI. But I do have..." + (show)
@colorbug

I can so relate to you. I've wondered about getting an MRI. But I do have an appointment for a nerve test late November. Just don't know if I can make it till then. Let me know what you find out. Thank you.

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What kind of nerve test are they doing on you? they want to do a myelogram on me. I'm nervous.

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