Tylenol and over the counter medicines for transplant recipients is something that many of my nontransplant friends do not understand. Although they have the best intentions, they have occasionally given me unsolicited advice. Has that ever happened to you? I am extremely thankful for this Mayo Connect online Community where we can openly share, support, learn together while always adhering to the advice of our own transplant team.

@marilynwhitlock, I am so glad that you brought up the question about Tylenol to the attention of this group! I don't know how long ago you had your transplant, but you are absolutely correct to ask questions when there is any doubt or uncertainty.

I had a recent experience that I want to share because it relates to this topic. 2 weeks ago, on a Sunday morning I went to my local ER due to a quickly rising temperature and intense shivering. . Since I was a transplant recipient, I was immediately tended to (I had called in advance, and surprisingly the ER was not busy at 6AM) I was given IV Tylenol to bring down 103 fever, and had all kinds of lab tests that all came back negative according to the doctor. When the discharge nurse removing the IV and getting me ready for discharge, she told me that I could continue to take Tylenol, or - Motrim (for some leg soreness from previous day yardwork). She acted surprised when I said no to the Motrim, I did not consider her to be qualified to tell me that, plus I did not need it.
@kathycaudle, @jerrynord, @silverwoman,@marilynwhitlock @ronromo - Has anything like that ever happened to you when being seen by a nontransplant health provider? How did you respond?