Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Thank you that sounds hopefull

Thanks that sounds hopefull,
ill try the website

If taking your dose all at one time works, do that. I now take my 10 in a split dose with 7.5 or 8 in the morning and 2 or 2.5 in the evening. Each of us is different so it pays to experiment, but once or twice a day is typical.

My stiffness has increased recently I went from 10 mg to 9 mg. Each morning I am really stiff in my upper legs left wrist and shoulder. I take my meds at 5 or 6 am so that by 11 am I am ok to do physical activity my crp level is 1.0 so that is fine. Should I feel this stiff each morning as my dosage gets lower. I started at 40 mg in June now tapering about 1 mg every weeks to a month. any thoughts

Hi there. That's a very rapid taper. If I were you, I'd go back to where I last felt good and stay there a month. Then try a very slow taper, maybe one mg. or half mg. a month. Never more than a 10% drop at a time. Best to you.

Does the evening prednisone interfere with your sleep and cause strange dreams? I have been loathe to take it then because of that reason. Thank you for posting.

I was a bit concerned about sleep issues, but have no problem at all.

Good morning! I'm Kay and I was recently (last 2 months) diagnosed with PMR. I'm so glad to find this site. I'm on prednisone and taking Advil which helps with the pain. Every morning I usually end up taking my Advil first and then sitting in a chair with a heating pad. I try though to get up and move around instead of just sitting until the pain subsides. I'm so interested in hearing other stories and what others do to help themselves. They say this can last a few years. I find that there are some side affects from prednisone. I experience some sweating. It reminds me of hot flashes. I'm tired and just feel off. My nose runs as well at times. Do you experience this?

I'm now on one 20mg per day and I take it in the morning after my Advil. They are keeping me on this 20mg for an extended time. I seem to sleep good, in fact, I'm very sleepy/tired at night.

My first indication that something wasn't right was when I was in such discomfort/pain. I tried getting into Orthopedics but the wait was too long. I then found out about an urgent care Orthopedics clinic near me. That Dr. thought that it might be PMR (first I've ever heard of it). He started me on 50mg/day for 3 days, then 40mg for 3 days, then 30...etc. etc. As I decreased the dose the pain returned. Five days later of totally being off the meds I had a regular appointment with the Orthopedic doctor. He did blood work, xrays, etc. and confirmed it. I then met with a Rheumatologist whom I love and sticking with. She placed me on an extended prednisone plan. I pray that as I eventually decrease the amount that it will finally be gone. Thank you for sharing your question.