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@america

Hi, I’m new on this chat so please any help would be great. I also have MAC since 2012 and was on meds for 6 months. I got really sick and had to stop. I’m always so tired and and can’t do much of what I use to do. I have lost 40 pounds and feel very weak. Just need to talk with someone who understands this disease. Thanks.

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Replies to "Hi, I’m new on this chat so please any help would be great. I also have..."

@flib so glad to hear.  It was really worth it for me to keep my lungs from getting a bad lung infection.  I am glad you notices the difference.  I am sure you used the one with RELIEVE CONGESTIONS. (Blue labels) It also BALANCE MUCUS LEVEL.   OUR BODY IS LIKE

AN INCUBATOR FOR BACTERIA as my doctor said SO WE MUST DO PREVENTION AND HIGH doses of PRE& probiotic is always the best way to prevent bacteria to develop.  Get yourself a good army of good bacterias to fight the enemies! 

A MAC can live in a person without any symptoms according to my pulmonary doctor. The infectious specialist said the same thing.  He said if we would do a bronchoscopy on everyone we would find a good percentage of people who have MAC. If you are asymptomatic

keep it this way.  clear you lungs! Nick 52

@windwalker Teri I always use colloidal silver on my skin to heal and it heals very fast. If you need to heal a burns on your skin it sure does the job fast! Nick!

@boomerexpert you are using CBD for your arthritis pain right? Nick

@america, Hello, and welcome to our group. I am so glad that you found us. As you read through older posts, you will learn alot about the disease we all share. I'd like to explain some of the ins & outs of using this site. When responding to someone else's post; please begin your text with @whoeversname at the start of your post, like I did on this post to you. That way your message will get to the person you are talking to. This is an open forum, so all are free to read your texts and also jump into the conversation as you have already seen. If a conversation appears to be just between two people; most are considerate and grant you some personal space. Here is a tip: If you wish to concentrate on what one person has posted over time, you can click on their name and a thread will come up. Also, did you see the 'Discussion Board'? You can go there and click on a topic. Please let me know if you have any questions. - Terri Martin, Volunteer Mentor

@america, If you tap on my name, a list of my posts will come up. I have stated many times that the 'Big 3' antibiotic cocktail is not the only game in town for treating mac. I have bronchiectasis, copd, mild pulmonary hypertension, mac and pseudomonas infection (both in remission) & SVT of the heart. I have been through a lot over the years; therefore, I have a lot experiences to share. My journey with mac started out horrible, but now is manageable. I have a good quality of life now due in part to my being treated at the Mayo Clinic. It is very important that you have a 'knowledgeable' doctor. You'd be surprised how many drs, including some pulmonologists, know very little about how to treat this disease. Do you feel like you have a good doctor?

@boomerexpert, I would like to know the dosage you are on, and did you have any side effects? I contacted the people who made Charlottes Web to see if they had anything more specific to MAC/MAI BRONCHIECTASIS.
It seems individual research is quite prominent on this site, which is good, but it also adds to the confusion. Charlottes web seems to work great for some people with epilepsy, but not for others, which is typical with any kind of over the counter or prescribed medicine. I think CBD oil might help my aunt, but I’d like to know if you had side effects.

@flib Are you using Ridgecrest Clear Lung? And are you using the “advanced” one?
Thanks

@colleenyoung I was able to get CBD online before medical marijuana was legal here in FL...It is legal in all states, something Sen. Grassley was trying to change but he couldn't get the votes in the Senate

@nick52...yes, as I mentioned, to reduce inflammation

Hi boomerexpert, I am going to try and get the CBD oil. I’m not sure if my doctor will give it but I’ll try. I’m in Florida so it should be ok. Thanks Rita.