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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: 2 days ago | Replies (566)

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@olivedog

Hi,
This site has me quite confused, I am in the midst of trying to find a doctor who will communicate with me about this debilitating stuff. I was seeing a urogynecologist at RUHS, after injecting my pudendal nerve, the 3 branches unguided with kenelog it has moved to my whole pelvic floor, involving now everywhere the pudendal nerve is! I try to write, and call
but get no replies. The pain from this is horrid. I contacted my first urogynecologist yesterday and am waiting for a reply from him. This year I've had to have major rectal descent surgery, requiring a rectopexy, cystocele & rectocele repair. The nurse at my first urogynecologist told me the kenelog can take 6 months to wear off, as this pain after defacation was only confined to the rectum, now all over. I had an appointment for a nerve conduction study on Tuesday, with a nuerologist who can do this study in the rectum. Right now I could not even fathom the flaring this would cause, on top of where I am. I am on pain meds by PCP, but she has no one to refer me to. I'm in Temecula CA, and urogynecologists are unheard of here. I guess I'm asking, how and where do you go to get help. I do not want to be put on drugs, pain pills are even not me. How did you get help? Thank you for reading, any information would be greatly appreciated...as I am at a total loss. Thank you!!!

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Replies to "Hi, This site has me quite confused, I am in the midst of trying to find..."

I have read somewhere in these post regarding nerve entrapment, there is a Dr Anthony Gillespie at St Joes in Phoenix, AZ. that is very successful with nerve entrapments surgeries. .

Hi Olivedog, I strongly recommend a test to indicate if you have ACNES (abdominal cutaneous nerve entrapment syndrome. Take the Carnett test. Lie flat on you back on a hard surface. Next with legs together lift just your legs up a foot or so. Most of the time the pain is below the lower right rib cage. Next try just lifting your head and upper body. If you have extreme pain from this there is real possibility your have ACNES. Next you need to find a pain management clinic that has a doctor who knows what ACNES is. Almost all doctors are not familiar with it. He should trigger point cortisone into that area. You can find this procedure on Youtube. If you have immediate relief this is the clincher. Problem is this will not last long. My lasted about a week or so. I had 4 more shots with less and less relief. I fortunately found an amazing surgeon at St Joe's in Phoenix who robotic laporoscopicly cut my T8, T9 and T10 nerves. I was pain free from the ACNES when I left the hospital that afternoon. Prior to surgery my pain level was horrific! Jeff

I have a physiatrist for pain management. This is his specialty. However, only having minor positive results. It appears that there maybe little that can be done for this pain.