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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (329)Comment receiving replies
Just wanted to wish you good luck on your visit to Rochester tomorrow and hoping all your labs are encouraging! Oncology/hematology is my old stomping ground. You have a great group of doctors. I was just there last week.
Did you ever in your lifetime expect to be able to look at blood results and understand what they all mean? 😉 How our lives change with a diagnosis…
What is your follow up to check your lungs? Chest X-ray? CT scan?
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Yes, Once there are medical concerns, much information is available. And learning is good, and feel one needs to be their own health advocate. ... but also be wary of the source of information one can find.
Tomorrow, labs and CT appointments in the morning. Hematology and Oncology appointments in the afternoon.
Chest CT is requested by Oncology as they are watching to see if there is any reoccurance, or issues with the lungs and chest.
Hematologist appointment is looking at the labs and checking the SMZL progression. The chest CT also shows most of the spleen , so size progression is monitored as well. I'm on "watch and wait" ... but waiting isn't easy. Always have "scanxiety" before these appointments.
Thanks