Any thoughts?
I am looking for any ideas as to what I should do next as a step for healing. I have been dealing with health problems since I was a child. Every few years, another problem presents itself and I am still left with no official diagnosis.
-Missing adult teeth (possible genetic issues?)
-missing a rib on each side (possible genetic issues?)
-Heavy child even though I played sports and ate healthy
-severe constipation as a young child then started with extreme stomach pain and diarrhea around 8 years old and was diagnosed with IBS
-Terrible painful acne into my 20's
-Tonsillectomy at 17 (I was getting sick constantly)
-High Blood Pressure diagnosed at 18 (Lasts for months and then seems to resolve itself for a while, then back on meds again)
-Reoccurring sinus infections
-Bloating
-painful periods/intercourse and frequent painful urination (had exploratory surgery and was diagnosed with endometriosis and Interstitial Cystitis)
-extreme fatigue
-low energy
-always cold
-numbness in hands and feet
-insomnia
-diagnosed with dysautonomia
-Infertility issues with no diagnoses
-miscarriages
-fertility doctor sent me to an endocrinologist to get some answers (weight was creeping up fast, blood pressure issues were back)-stains in bra where nipples are-dull pain under breasts-no sex drive
-joint pain (especially hips and ankles)-hair loss
-blurry vision
-headaches
-facial and muscle twitching-Significant weight gain in a short period of time and unable to lose it-had a blood test done to check for food sensitivities and followed plan of nutritionist. no changes except for stomach feeling a little better
-told I was insulin resistant
-was put on metformin- made me go to the bathroom more than I already do (no change)
-was put on trulicity shot, made me extremely nauseous (no change)
-was put on a low dose thyroid medication even though labs were in normal range just in case
-began having hypoglycemic episodes mainly at night and while sleeping. Carbs and sugar make it worse.
-small flesh colored bumps on ankles and side of knees-current endocrinologist ordered an abdominal MRI to check for insulinoma. nothing showed, waiting to see about an endoscopic ultrasound
I NEED to feel better and I am welcome to any thoughts or ideas, please and thank you!
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Thanks @becsbuddy and @change25 ! I actually reached out to Mayo and I have the clinic questionnaire that I now need to fill out. I never thought I would need to consider traveling somewhere to get help, but I can't wait anymore. I hope they will be willing to help (fingers and toes crossed).
@hopefulhealing I am so glad to hear this! Wow! But please remember, that Mayo doesn’t/can’t take everyone. Sad, but true. Here is a link to hospitals that are in the Mayo care network. https://mayoclinic.org/about-mayo-clinic/care-network/members
I’ll keep my fingers and toes crossed!
Whelp they did not take me. I literally don't know what else to do 🙁
Oh, oh, @hopefulhealing. I’m so disappointed for you, but ,please, don’t give up hope. Have you checked the clinics in the Mayo Care network?
https://mayoclinic.org/about-mayo-clinic/care-networks/members
And large regional hospitals? I know you’ll find help, it’s just taking time. Will you stay in touch with me?
Good morning @hopefulhealing. I found these 2 things which might be helpful:
http://Www.rheumatology.org. This organization has a “find a rheumatologist”
https://health.usnews.com/best-hospitals/rankings/rheumatology. This also might be worth a try.
Let me know what you learn so we can pass it on!
@becsbuddy thank you for continually checking in. I am seeing my endo next week and plan to get the information Hopkins needs to visit a rheumatologist there. We will see what happens...
Thanks again!