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@laniek

Glad you are feeling/breathing better! Funny you mentioned the IV - She did have 6 IV iron treatments this summer and says her blood iron levels looked good when checked a few weeks ago about a generous month after the last Iron-IV treatment. I wonder about vitamins.... Will pass that on to her.
She says it could be 9 months to a year before she sees improvements( recognizes??? heals?) from the gluten free and avoid gluten contamination diet. She just got the celiac confirmation a few weeks ago, though it was mentioned as a possibility in June. Month 1 of her much more careful approach to gluten free and I think she slipped once by snacking on "safe?" parts of a snack box ( compartmentalized) that also had pita. In progress. She saw it could be a problem the next day. Lots of planning ahead for hunger at work in this!!!!

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Replies to "Glad you are feeling/breathing better! Funny you mentioned the IV - She did have 6 IV..."

Hey Lanie just curious how is your daughters syrinx. Has it remained stable?