Chemo for esophagus cancer: Any advice on things I should or not do?

Posted by fracturedd @fracturedd, Sep 5, 2021

I was recently diagnosed with Adenocarcinoma of the esophagus with her2 “positive”. I’ve been on one chemo pill and one infusion. The pills gave me ulcers in my colon along with every other side effect and I ended up in the ICU for 2 nights- 7 night hospital stay. Since then they haven’t started me on the chemo pills again (they said I need a break to heal) so I’m only on the infusion. My follow up pet scan is wed and I’m scared that only being on the one infusion just wasn’t enough. I’m trying to stay positive. Anyone have any advice as far as extra supplements or things I should or shouldn’t do. As of now I’m walking, take curcumin, vit d, acupuncture, cbd oil, that’s really it. Any positive info would be appreciated.

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@hearttoheart1

Thank you all for sharing
Your positivity is inspiring for the road ahead for Michael and myself

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Hi Hearttoheart. I just thought I’d check in. How are you and Michael doing?

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@colleenyoung

Hi Hearttoheart. I just thought I’d check in. How are you and Michael doing?

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Morning
Treatment starting very soon now for Michael
Today we are going to hospital so he can get his bloods done,a COVID test and be told the chemo drugs he will be given
On Thursday he will have the port line inserted
On Friday dental appointment
Next week he will start his treatment
I am still in shock as to the suddenness of what is happening
Only a few months ago we were so happy he had reversed his diabetes..but deal with this ,we must
Thank you for your support
I meant to reply sooner
I will let you know how he is doing when we get more info and detail
We had a zoom call meeting with oncology nurse
Explaining what lay ahead and what we can do at home to make life as best we can
I have been given literature which I try to absorb in small amounts
Will be in touch soon again
Please keep up the prayers 🙏😔

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@hearttoheart1

Morning
Treatment starting very soon now for Michael
Today we are going to hospital so he can get his bloods done,a COVID test and be told the chemo drugs he will be given
On Thursday he will have the port line inserted
On Friday dental appointment
Next week he will start his treatment
I am still in shock as to the suddenness of what is happening
Only a few months ago we were so happy he had reversed his diabetes..but deal with this ,we must
Thank you for your support
I meant to reply sooner
I will let you know how he is doing when we get more info and detail
We had a zoom call meeting with oncology nurse
Explaining what lay ahead and what we can do at home to make life as best we can
I have been given literature which I try to absorb in small amounts
Will be in touch soon again
Please keep up the prayers 🙏😔

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What seemed to knock out my Tumor ( So big I could only swallow liquid!) was Radiation! I'm stage four, Radiation all but eliminated the tumor! 28 radiations, 5 chemo! Good Luck!

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@rexsan20

Praying for you!

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I am having take Pantoprazole 30 minutes for a meal. 1 Daily. Does this help with Barret's Esophagus?

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@hearttoheart1

Morning
Treatment starting very soon now for Michael
Today we are going to hospital so he can get his bloods done,a COVID test and be told the chemo drugs he will be given
On Thursday he will have the port line inserted
On Friday dental appointment
Next week he will start his treatment
I am still in shock as to the suddenness of what is happening
Only a few months ago we were so happy he had reversed his diabetes..but deal with this ,we must
Thank you for your support
I meant to reply sooner
I will let you know how he is doing when we get more info and detail
We had a zoom call meeting with oncology nurse
Explaining what lay ahead and what we can do at home to make life as best we can
I have been given literature which I try to absorb in small amounts
Will be in touch soon again
Please keep up the prayers 🙏😔

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Think of you and Michael. Yes, things have been moving fast. While it’s a lot to take in, I’m sure you appreciate the speediness with which he is getting diagnosed and treated. I will be thinking of you as treatment starts this week.

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@rexsan20

I am having take Pantoprazole 30 minutes for a meal. 1 Daily. Does this help with Barret's Esophagus?

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Rexsan, do you have Barrett’s esophagus? Or are you controlling acid reflux in order to reduce your risk of developing Barrett’s?

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Biopsy shows Barrett’s Esophagus. This is a change in the normal lining of the esophagus that has a precancerous potential. NO cancer was identified. Patients with this change should undergo periodic surveillance to assess for progression to more advanced stages.
The polyp was adenoma- precancerous but no cancer in it. The doctor said this.

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@rexsan20

Biopsy shows Barrett’s Esophagus. This is a change in the normal lining of the esophagus that has a precancerous potential. NO cancer was identified. Patients with this change should undergo periodic surveillance to assess for progression to more advanced stages.
The polyp was adenoma- precancerous but no cancer in it. The doctor said this.

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I do have Barrett's, I have stage four Cancer I Guess, they said it was a 4 but reduced to 3 because it hadn't spread, well it did spread, no surgery! It went into my L3 Vertebrae! I NEVER have any indigestion, 28 radiations & 6 Chemo, the tumor is gone, however 80% chance of returning! I'm on KeyTruda every 3 weeks & another flavor every 2 weeks for the bones! My biggest issue is I have an Arthritic hip & this stuff attacked it to the point I can't walk without cane or crutches! They put me thru Prednisone pills but they did nothing ! iBUPROPINE

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@rexsan20

Biopsy shows Barrett’s Esophagus. This is a change in the normal lining of the esophagus that has a precancerous potential. NO cancer was identified. Patients with this change should undergo periodic surveillance to assess for progression to more advanced stages.
The polyp was adenoma- precancerous but no cancer in it. The doctor said this.

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rexsan, I was diagosed with Barrett's Esophagus in 2018 after I had internal bleeding from my small intestine. I was told to go on protonix PPI and eat low acid diet from now on. I did the diet very strictly and on my last EGD in 2020, my Barrett's esophagus was no where to be seen. I hope it doesn't come back and that's why I keep to my strict diet. Good luck with your diet and keep taking the PPI.

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