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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (329)Comment receiving replies
I am very grateful that my reaction wasn't worse than it was. My nurse, Ben was calm and capable. I felt much more confident with him taking care of me. BTW my second opinion with Mayo is scheduled for 12/17. By then I will have completed the 4-week course of Rituximab and will hopefully be on the road to remission. I do want to hear what the Mayo Dr has to say as I believe any and all information on this rare disease is beneficial.
Replies to "I am very grateful that my reaction wasn't worse than it was. My nurse, Ben was..."
Am glad to hear your first treatment is completed. Is the plan for 4 treatments? One ever two weeks?
As I mentioned, I have the same diagnosis and am leaning what may be ahead for me. My past lab results show Hemoglobin and Hematocrit levels are normal . My Lymphocytes are climbing and quite a bit above normal and Platelets are below normal. I bruise easily and spleen is enlarged, but really, no other symptoms.
I appreciate hearing the details of your treatment and future appointments, as well as Lori's comments and explanations. I have my 6 month follow up appointment in Rochester tomorrow, Oct 21, with Hematology and Oncology. I have follow up appointments with oncology because two years ago when they discovered my Lymphoma, they also found early stage lung cancer and they removed the upper lobe of my right lung. So far, no reoccurrence of that problem.
Thanks and take care.....
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I’m relieved right along with you that the reaction didn’t escalate. You were in very capable hands. It really helps when we’re given calm reassurance when our ‘red flags’ go off inside. ☺️
Now let’s hope the Rituximab does its magic for you. It really took care of my over-zealous B-cells and calmed those thugs right down. They’re critical to our health but when they’re just trolling around in our bodies, looking for trouble, they need some speed bumps!
I’m really happy for you getting an appt at Mayo and will be curious to hear what they have to say too. Following your journey can be really beneficial to other members in Connect. Will you report back to us after your appointment? (And certainly it’s not implied you have to wait that long to “Connect” with us!! We’re here 24/7😍)