@windwalker yes my brother had a double lung transplant because he had both pulmonary fibrosis. His lungs was all hardened by the disease.  He was a strong smoker and was expose to diesel fume.  He had his transplant for 10 years and pass away  2years ago.

He fought very hard to stay alive.  After his transplant his wife was still smoking outside or in the basement but the toxins was all in the house.  People who smoke around you is very bad for people with lung disease.  I have a lot of problem understand why

people are given permission to smoke around the pool.  It doesn’t matter if you smoke outside the darn toxins is in the air and you have problem breathing. We can’t eat outside a restaurant because smoker try to kill us because they are permitted to smoke

outside a restaurant.  What a pity we are paying for those who don’t care for there life! Nick! 

@flib i have a very stupid question? Do you have pain on top of your feet above the toes? Or under your feet where your palm is? Nick

@nick52 Awe....I am so sorry that you lost your brother. He did well to stay alive for ten yrs after his transplant. It is the most difficult of transplants. What year did he have his transplant? Did he have it done in Canada?

@gaelawree Hi there! I hope that today finds you doing as well as you were doing the day you posted this. I suppose you will be starting the Will you please check back and let us know how you are doing with it? I love your positive attitude!!

@windwalker Hi Terri, yes I am doing well, thank you for asking. I have started the 1st & 2nd antibiotics & starting the 3rd on Monday. So far it’s going real well. I’m tolerating the antibiotics. I hope I do with the 3rd one too.
I get notifications from the group everyday & usually read them all. There is a lot of info. When I have Info to share I will post. Pretty much staying about the same right now.

@windwalter my brother had both lung transplanted in 2005 in Montreal Canada (lung transplant hospital). There is none in New Brunswick.   He nearly died because he caught a very bad bacteria and the antibiotic wasn’t healing the infections in the lungs. He

had to have another surgery because the bacteria opened up his wound.  He was between life and death so we decided together to get on probiotics and he took them for a very long time.  Most double transplant have a life expectancy of 5 years and only 10% (i

think) make it to ten years.  He was taking good care of himself but the last two years his kidney wasn’t working properly his body was retaining too much water giving him puffiness and swelling. He had a big cocktail (pills) to take.   Nick

What a hard time. I hope your brother gets some relief. Must be difficult for you too, seeing what he is going through.

My brother lived 10 years after his lung transplant from 2005 to 2015. His body was rejecting the lungs so they couldn’t do anything for him. He fought hard but lost the battle. He was 60 years old. At least he had 10 more years with his grand kids. Nick

@nick52 ..I am so sorry for your loss of your brother. Kate