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@loribmt

Well, you got one infusion out of the way, in a roundabout fashion! 😉 It’s pretty common to have a reaction with the first Rituximab treatment. My transplant doctor told me to it was likely so I wasn’t too surprised when it happened. But really didn’t know ‘what’ the reaction would feel like. About the same timeframe as yours, 20 minutes, I got a feeling like a piece of potato chip got lodged under my tongue in the back. However, I wasn’t eating. LOL Then the feeling moved to the throat and started on the other side. Ope…that was the aha moment! So I alerted the nurse, who already had 50 mls of Benadryl ready to inject into the line and prednisone if needed. But the Benadryl worked. I’d had Benadryl and Tylenol before the treatment too with the slow drip time. Anyway, it worked as we slowed it down even further. The subsequent infusions went off without a hitch. I expect yours will too. That was the only side effect I had.

I’m sure you’re relieved to have that first on out of the way so you know what to expect in the future, sans the reaction! We’ll hope that it’s a one-off.
It’s great your nurse has the same infusions. Makes you feel a little more comfortable, doesn’t it? ☺️

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I am very grateful that my reaction wasn't worse than it was. My nurse, Ben was calm and capable. I felt much more confident with him taking care of me. BTW my second opinion with Mayo is scheduled for 12/17. By then I will have completed the 4-week course of Rituximab and will hopefully be on the road to remission. I do want to hear what the Mayo Dr has to say as I believe any and all information on this rare disease is beneficial.