You’re so welcome. Honestly, I can completely empathize with what you’re going through. It’s really tough to have your world turned upside down with any diagnoses of cancer. That very word just conjures up the worst possible outcome. It’s human nature to think that way.

I had a very aggressive blood cancer 2 years ago, acute myeloid leukemia. My odds of survival were not good. Thankfully, chemo put me in remission, but I had a high risk for relapse within a year. A bone marrow transplant was my only hope of longevity.
Well, here I am, 2yrs 3 months later after my transplant. Alive, surviving and thriving!! Just had my checkup with my transplant doctor/oncologist/hematologist 2 days ago. We having conversations and joking about what I’m going to be doing 10 years from now! I’m in complete remission from AML. That’s why I say, I’m proof of better living through chemistry. We all hear the negative stories of Big Pharma but wow, we have to learn to trust the system sometimes. I would not be here today without these treatments and medications. Hah, and the immune system of 20 year old stranger!

So I really do share your concerns over what your husband is going through. It is frightening but he has a slow developing cancer. And it can be kept at bay for quite some time with a medication that inhibits the proliferation of those B-cells that cause his particular disease. Fatigue is just part of his life now, I’m afraid. Blood cancer will do that. So with or without the meds he will get tired. It’s the nature of the beast. He’ll have to pace himself during the day. There’s a great discussion started by a fellow mentor, @becsbuddy on the Spoon Theory~How to plan your day and conserve energy. https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/

As cancer patients we lose part of ourselves, the normalcy. It comes with a period of self mourning. But we have this tenacious ability to accept, adapt and move on. I hate the term ‘new normal’ but it’s exactly what happens when we grab hold of our current situation and learn what we need to do to survive the next step. Hope is what propels us forward and keeps us going.

What are some favorite things your husband likes to do?