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Replies to "I was found to have eagle syndrome, by accident. I was in the ER with INSANE..."
Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)
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I was found to have eagle syndrome, by accident. I was in the ER with INSANE left sided throat and neck pain, they did a CT scan and the raiologist stated that my styloids were elongated, which corresponds to eagle syndrome. This was over 7 years ago, and i only got attacks that bad like twice a year. now im having crazy neck pain, headaches, dizziness, ear pain, pain when i turn my head, etc.... I live in NY, I need relief from this....Who do I go to....both my ENT's, have NO experience in eagle syndromes. Please help!!!!
Replies to "I was found to have eagle syndrome, by accident. I was in the ER with INSANE..."
If you have money the best ENT to do surgery is here in Idaho state he did mine and I do feel great it was right side and unfortunately I have to do left side to in December
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Hello @bambu46422, Welcome to Connect. I know it's extremely difficult to find help when you have such a rare condition as Eagle Syndrome. There is a site that was referenced earlier in this discussion which may be helpful in locating support and finding some relief.
Living with Eagle Patients Support Community: https://livingwitheagle.org/
@abbyco @1000piece and @christina61 may have some suggestions to share with you. Can you ask your ENT or doctor if they have any suggestions for finding help such as a nearby teaching hospital or major health facility?