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Waldenstroms and amyloidosis

Blood Cancers & Disorders | Last Active: Apr 28 8:35pm | Replies (72)

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@jam5

He will have repeat labs next week First one after treatment was unchanged along with repeat PET CT scan. Planning to only monitor and not agree to any other treatment at thus time

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Replies to "He will have repeat labs next week First one after treatment was unchanged along with repeat..."

I’m really curious why your husband is so reluctant to continue with treatment for his blood cancer. I know you’re both upset that he is now immunocompromised from the Rituximab. But the fact of the matter is, his blood cancer puts him into that category already. So if it’s suggested, wouldn’t it be better to continue with a treatment such as Rituximab, which inhibits the overly active B cells in his body and prevents any further progression of his disease. It wouldn’t add to his compromised immunity but potentially increases his prognosis as opposed to doing nothing.

Living with a compromised immune system doesn’t have to be disruptive. It’s a shock initially, of course, because there’s a change in our normalcy. But it’s mostly a matter of just being mindful when we’re out in the world. It shouldn’t impact the ability to enjoy and live life to its fullest. I’m one of those people and it hasn’t slowed me down one little bit.

What concerns does your husband have over continuing with treatment?