I'll now put here my status. Diagnosed in 2017. Started on Imbruvica alone, then since 2019 I've been on Venetoclax, and completed the additional Rituxan infusions. I got 'chemo curls' and am watching to see if the R did it and if hair will straighten out now, or if it is the V. I'm told to be on V 'for the rest of my life' which means doctor is afraid to stop the medication. I think this is considered to be a medicated remission. Every day I feel exhausted and fatigued (how people with a flu might feel) and don't know if that is the medicine or the leukemia. I do remember what it feels like to be normal because I have that an hour or two first thing in the morning, then by afternoon its fatigue time and I need to lay down to take a break from just sitting. I do cardio once per week best I can (wipes out most energy of the day) and walk around the block each day. I'm happy to be alive, I look forward to my sketchbook and learning stuff about drawing and painting (that's my playground), it brings me joy and I should have been doing this before diagnosis. I like to go outside to feel the warmth of the sun, the breeze, and see the beauty of plants. My favorite weather is clouds in the sky, and the rare times when the sun is shining at the same time rain falls. I also like reading stuff.

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