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What is the recovery like following septal myectomy?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 25 1:44pm | Replies (141)Comment receiving replies
Hello! As of today, I am a new member of this Mayo Connect page, not a new patient at Mayo Clinic. I visited the clinic in Scottsdale, AZ, two times; 1 for six days, the other for four days, and then Rochester, MN, for two days – for a different medical problem. At the end of September, I was diagnosed with Hypertrophic Cardiomyopathy after going to the ER at the Oklahoma Heart Hospital with A-Fib for the first time. Everything went downhill from there. After all the tests, the 2 hours MRI showed my results. Today, I informed my Cardiologist at our Heart Hospital that I am a long-time patient at Mayo, and he said, "Why did you not tell me you need to go there;" I was impressed. He is a big-time follower of the Mayo Clinic in Rochester and follows all of Dr. Steven Ommen's writings and videos. He said he would love to have the doctors inform him of the treatments and follow my treatment directions.
So, I'm calling tomorrow to book an appointment. If you have gone to Rochester, what is an excellent hotel to go to, close to the hospital? As I am sure of most of you, I cannot walk very far. I do have an elect chair I can bring if necessary.
I look forward to following all your posts and praying that the doctors understand and know this wretched disease becomes greater and greater. Bless you, all!
Replies to "Hello! As of today, I am a new member of this Mayo Connect page, not a..."
There is a hotel right next to the main clinic. I think it is called The Kahler. It connects to the clinic with a covered bridge over the street. Mayo will send you a packet with all the information you need. The packet includes maps that show where everything is located. As for a wheel chair, they not only provide free wheel chairs, they also provide someone to push you around to wherever you need to go inside the clinic. Also, there are continuous free shuttle buses that pick you up at your hotel/motel so it really doesn’t matter how far you are from the clinic. You may want your electric wheel chair for your convenience at your hotel. But check with your hotel about that. They may have some available. I don’t know about that. Best of luck to you. You are in good hands.
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Welcome to the HCM group. You have already experienced the center of excellence the Mayo Clinic is, so you know you are in good hands. Dr. Ommen is not only the top expert in the world on HCM, but he's a super nice guy too. I had a septal myectomy last summer in Rochester. My significant other and I stayed at the Courtyard Marriot, which is literally across the street from St. Mary's hospital. From this vantage point you are easily within walking distance to not only the hospital, but many restaurants and the really nice Fresh Thyme market. The advantage of this location is also for your loved ones. It's so convenient for them as well, the front entry is right there. The other advantage (like how many are there?) is that you walk across the street, hop on the free shuttles to the Mayo Clinic downtown for any tests required there. And Chester's is downtown! Yum! This is only my opinion regarding the Courtyard Marriot. Others may have another opinion. The hotel was clean, the staff friendly. They served Starbucks and had a bar. Can't ask for much more! The Mayo Clinic must have several thousand wheelchairs in service. They are in every store and hotel I think. People take them to their hotels. The hotels store them. The hospital comes to get them. You should not have to worry about a wheelchair. If you are having surgery, they want you to walk 900 times a day (exaggeration--more like 12) so you will walk around a lot, weather depending. But you keep the chair as long as you need. Snoop around this group site. There is A LOT of information from people just like you, in just your situation. We all can identify with each other. Tips, suggestions, experience. It's all here. This is special group to be sure. Not everyone has what we have, and not everyone is blessed to go to the Mayo Clinic. They are the best in the world. Your care will be outstanding.