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DiscussionDoes anyone have B-cell prolymphocytic leukemia (B-PLL)?
Blood Cancers & Disorders | Last Active: Nov 14, 2022 | Replies (188)Comment receiving replies
Replies to "It’s so hard when we lose track of someone, isn’t it? When was the last time..."
Smith123456 was in remission and seeking treatment again. He was on another cancer forum for chronic leukemia over 3 years and that forum is private and posts aren't searchable for browsers so discussions are not found (just the forum, not the posts) He had B-PLL and stopped posting anywhere 6 months ago after needing to start treatment again. We had similar treatment programs, and he shared upcoming drug possibilities when he learned of new drug trials. There's so few of us with B-PLL that sometimes we really don't fit in to the other forums, but the other forums have more people, more possibilities of treatments to consider for our situation, more discussions on dealing with cancer and the drugs we are on. He made me feel welcome and always said that our B-PLL is treated like a more aggressive chronic leukemia so when we look for the next drugs or treatment we can look to that other group of cancer patients for ideas, and thus fit in. There's no specialists for our diagnosis either. He was very active on the other forum helping people with chronic leukemia to understand medicare and how coverage works to cover costs with the expensive cancer medications we are on and sharing about possible treatments . I do hope Smith123456 is still out there and successfully treating again toward another remission.